The Ryan White Story,
and Mine
A made-for-TV movie had a happy ending. Ryan’s family moved to
a new community where they found acceptance and tolerance. The
final scene showed Ryan arriving at his new high school. With news-
paper photographers’ cameras flashing, the principal shook his hand,
saying, “We’re happy to have you.” He led Ryan to a crowd of students
who walked him toward the school building. Hope broke across his
mother’s face as she watched. Waving and smiling, she drove away to
the catchy beat of Elton John’s “I’m Still Standing.”
I turned off the TV then and stared into the empty screen. A fresh
dread squeezed my insides. I knew Ryan’s story was not over.
The dying part just hadn’t happened yet.
At home, I climbed into bed, curled into a ball, my knees once again
hugged to my chest, and burrowed beneath my duvet. I couldn’t stop
thinking about what I’d watched. All these things didn’t feel like they
were supposed to belong in my world: the terrible accusations and
assumptions about how Ryan had contracted HIV; hatred from both
strangers and people who’d known him his whole life; people who
treated him like the disease was his fault. His family lost their privacy
and with it, security—something they’d always taken for granted. But
the worst were the moments when Ryan was so sick he couldn’t lift
his head from the edge of the toilet seat. Hidden under my covers, the
boding presence I’d felt with me ever since we moved from Moncton
seemed so much bigger. A pressing question hammered against my
skull: What’s next? What’s next? What’s next?
This question hung on my tongue the next morning in the car on our
way to school. I glanced at Mom. Her short brown permed hair was
still a bit damp from her shower, and the mousse-crusted curls needed
to be brushed out. Her face was smooth, even without makeup.
She steered the car down Abbeyhill Drive, approaching the entrance
to the school. I drew in a shaky breath, held it, and then blurted, “Is
Dad going to die?” It came out as a question, but I was not asking. The
answer had been there all along. I just needed to hear it.
The car slowed. Surprise registered on Mom’s face. She opened her
mouth to speak and then closed it. Her lips pressed together. My ques-
tion was a cavern between us.
“Mel,” she began, and I could already sense in her tone that she was
about to downplay, deflect, or reassure, the same way she downplayed,
deflected, or reassured anytime I got brave enough to ask questions
about Dad’s illness.
“Just tell me.” My voice was steady, but the plea behind the words
made it sharp.
We approached the school. Cars crowded the rectangular parking lot
out front, and students stood in clusters on the snow-packed sidewalk
by the main entrance, backpacks tossed over their shoulders, their
coats pulled close against the cold. Near the glass doors leading into
the school, I saw my friends: Penny, John, Russell, Sunita. They were
waiting for me before heading inside.
“Tell me,” I said again, this time less steady, as Mom pulled up against
the curb and turned in her seat toward me.“ Is Dad going to die?” I
turned too and faced her directly. My eyes locked on hers.
She gripped the steering wheel with her gloved hands and inhaled a
measured breath. Then, speaking in a defeated voice I’d never heard
before, she said, “Yes.”
The single word ripped through the protective blanket that she’d
wrapped around me for the last four years. It tracked into my mind,
sinking like a stone to the ocean floor, where it settled for good.
“Okay.” I stretched for my backpack on the floor and clutched the
door handle. “Okay,” I said again. I pushed the door open and climbed
out into the frigid air, welcoming it into my lungs. I walked toward my
friends, plastered a smile on my face, and shoved everything else back
down.
Just before I entered the school, I looked back toward the car and
lifted my hand to wave. Mom still gripped the wheel, her gaze trained
on me. She waved back and tried to smile, but tears traced lines down
her cheeks. She put the car into gear and drove away.
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