

Part bisexual awakening, part chronic illness memoir, Fever by Shilo Niziolek delivers a brutal, heartfelt recounting of the mostly-inner life of a queer woman whose body continuously betrays her. Told in untitled, fragmented vignettes, the book spans decades, reflecting on Niziolek’s past abusive relationship, addictions, her current partner, and her chronic health conditions.
Before the narrative begins, Niziolek greets readers with the definitions of two medical terms, one being “vulvar vestibulitis: a neuro-inflammatory condition in the vestibule, or opening of the vagina, in which inflammation starts from any number of a long list of reasons. This inflammation can cause severe pain during intercourse.” Upon seeing the definition, I was immediately excited to read this book. As a woman who also suffers from chronic vulvar pain, I was eager to hear another person’s experience of the challenges that appear when sex hurts. To my knowledge, the last non-medical publication about vulvodynia (an umbrella term for chronic vulvovaginal pain) is a book called The Camera My Mother Gave Me, written by Susanna Kaysen, who is better known for writing Girl, Interrupted. By simply writing this book, Niziolek contributes to a much-needed dialogue for a community of women that is much larger than one might think, with 16% of women in the U.S. suffering from vulvodynia at some point in their lives.
In a stream-of-consciousness style, Niziolek writes, “I wonder what it’s like to have a sexual body, not just a sexual being trapped inside an unsexual body (14). I felt seen when I read this, both jealous and grateful that this writer found such a succinct way to describe what many women go through when their bodies start saying no, when their minds still want to say yes.
After having vulvodynia for so many years, Niziolek rarely desires physical touch from her partner, which is a common occurrence for women who experience chronic vulvar pain. (Imagine that every time you eat a donut, you get punched in the face—you’re probably going to stop craving donuts at some point.) Thus, instead of moments of in-real-life sexual desire, this book is filled with desirous dreams. It’s almost like a dream journal—but forget the famous Henry James quote, “Tell a dream, lose a reader.” Niziolek poetically dissects her dreams and relates them to her real life, assigning them meaning and pulling in the reader.
Early on, she questions her dreams and their potency, writing “What kind of woman have I grown to be, who only dreams about bodies on bodies?” (25). After journeying through her dream realms on the page, it seems she arrives at an answer, referring to her dreams as her “double-life, cheating on my waking life with this terrifying and exciting and vibrant and cruel other life” (162). For Niziolek, dreaming is not just playing in the imaginary, but a survival tactic—a brief escape from a bodily existence rooted in illness. The dreams are placed among other non-linear vignettes of her life, both real and imagined; the fragmented style serves as a reflection of the divide between her mind and her body.
At Niziolek’s MFA graduation ceremony, a professor acknowledges her writing, saying, “writing cannot restore the female body, broken into parts, the body in decline, but…writing can regain the body, the words on the page become their own body” (19). Like her dreams, the very act of writing this book is another coping mechanism: a space where she can question her sexuality and attend to every desire that pops up, even the most fleeting. In this way, the words on the page come alive, allowing Niziolek to carry out a version of her life in which she is not chronically ill. Like her dreams, she can love whomever she wants, however she wants, on these pages.
Chronic illness—especially invisible illnesses—can be isolating and lonely. In these pages, Niziolek builds a support system—and not just for herself. This is a must read for any person living with chronic pain, and especially for those living with chronic vulvar pain. It’s a great chance to step away from the medicalization of our bodies and to turn inward, meditating on how this condition affects our innermost being and finding ways to live and love around it.
Fever is available at Querencia Press.
Heather Domenicis (she/her) is an Upper Manhattan based writer and editor. She holds an MFA in Creative Non-Fiction from The New School and her words appear or are forthcoming in Hobart, JAKE, [sub]liminal, and Anti-Heroin Chic. Born in a jail, she is writing a memoir about all that comes with that. You can follow her on Instagram @13heatherlynn1.






